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sicklecellanemianews
2 天
5 pain management strategies that benefit our family
Columnist and caregiver Sylvia Amuta shares the top pain management strategies that help her young cousin cope with sickle ...
sicklecellanemianews
3 天
Phase 3 RISE UP study of mitapivat for SCD completes enrollment
Enrollment has finished for the Phase 3 RISE UP study, which is testing the oral therapy mitapivat in people with sickle cell ...
sicklecellanemianews
5 天
Upcoming Phase 2a trial to test oral desidustat in sickle cell disease
Approved in India as Oxemia for anemia, desidustat stimulates erythropoietin, a signaling molecule secreted in response to ...
sicklecellanemianews
12 天
Enlargement of heart’s left chamber tied to worse disease severity
Enlargement of the heart’s left upper chamber in sickle cell patients is associated with worse disease severity, per a new ...
sicklecellanemianews
16 天
Access to food, transportation key for sickle cell children: Study
Preschool-aged children with sickle cell disease with limited access to healthy food and transportation are at higher risk ...
sicklecellanemianews
10 天
Women with SCD face significant healthcare challenges: Study
Women with SCD experience significant healthcare challenges, a study found, with researchers calling for training on ...
sicklecellanemianews
10 天
Esteban Dominguez Cerezo,
Women with sickle cell disease (SCD) experience significant challenges with healthcare while struggling with both the ...
sicklecellanemianews
11 天
38 and counting: Thriving with sickle cell disease
Columnist Oluwatosin Adesoye reflects on her thriving life as she turns 38 (and counting) with sickle cell disease.
sicklecellanemianews
13 天
Oxbryta’s withdrawal is a setback in the fight against sickle cell disease
Wilson explains how Pfizer's decision to withdraw Oxbryta from global markets could affect the sickle cell community.
sicklecellanemianews
2 年
Shaniqua’s Sickle Chronicles
Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses “Shaniqua’s Sickle Chronicles” to narrate her experiences, to ...
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