Cystic Fibrosis Foundation7 个月
How College Helped Me Open Up About My CF
Going to college comes with many changes, and for students with cystic fibrosis, there are additional unique challenges like managing medications and health concerns. While adapting to this transition ...
Cystic Fibrosis Foundation9 年
Delaware Valley Chapter - Harrisburg Office
The Delaware Valley Chapter - Harrisburg Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities ...
Cystic Fibrosis Foundation11 天
Living With Chronic Fatigue
I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...
Cystic Fibrosis Foundation9 年
Our Venture Philanthropy Model
In 1989, a team of scientists supported by the Foundation discovered the cystic fibrosis gene and opened the door to our understanding of the disease at its most basic level. People with CF and their ...
Cystic Fibrosis Foundation13 年
Alabama Chapter
The Alabama Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic Fibrosis Foundation3 个月
Delaware Valley Chapter - Philadelphia Office
The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...
Cystic Fibrosis Foundation3 年
Vascular Access Devices: PICCs and Ports
Who Needs Vascular Access Devices? Vascular access devices may help people with cystic fibrosis who need intravenous (IV) antibiotic treatments for more than just a few days, such as during an ...
Cystic Fibrosis Foundation4 年
Maryland Chapter
The Maryland Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Cystic Fibrosis Foundation3 年
Basics of the CFTR Protein
The cystic fibrosis transmembrane conductance regulator (CFTR) protein helps to maintain the balance of salt and water on many surfaces in the body, such as the surface of the lung. The CFTR protein ...
Cystic Fibrosis Foundation7 天
How I Navigate CF Across the Pond
When I fell into a health insurance nightmare after my lung transplant, my husband and I decided to move to his home country — England. Now, 10 years later, I feel like I float somewhere between the ...
Cystic Fibrosis Foundation3 年
Your CF Care Team
The health care professionals that make up your CF care team are experts in CF care. But you are the expert on the daily challenges of living with your CF. That means you play an essential role with ...
Cystic Fibrosis Foundation3 年
CF Genetics: The Basics
Cystic fibrosis is caused by mutations in the gene that produces the cystic fibrosis transmembrane conductance regulator (CFTR) protein. In people with CF, mutations in the CFTR gene can disrupt the ...